Mommy moments come in all forms of days at the park, backyard BBQs, or meetings at the pool. They are a great time to get to know other mothers and share activities as well as advice. But as the number of women who live with chronic illness such as chronic fatigue syndrome and lupus continues to grow, so does the spontaneity of the fun of these mommy moments.
According to the National Fibromyalgia Association, fibromyalgia (FM) experts estimate that about 10 million Americans and approximately 5 percent of the population worldwide live with this disabling condition of FM, one of the fastest growing auto-immune diseases in the USA. When I recently went to my adoptive moms play date group, even within this niche group, three out of the six of us had chronic illnesses. Being aware of they illness symptoms a friend may cope with, and the daily changes in their limitations and abilities, can make a big difference in how much they are willing to be a part of a mom's group and feel comfortable around other moms who all seem to jump hurdles at the speed of light.
[1]. Find out the best times of day for play-dates or activities. This will vary from season to season (weather and heat can affect it a great deal); and it also is different from one illness to another. For example, for some moms, mornings are good and afternoons are exhausting; for others they aren't moving or out of PJs before the clock strikes noon.
[2] Be understanding if she has to cancel, rather than bombarding her with guilt. Coping with a chronic illness means that every day is unpredictable. Last week I did nothing other than take a step and my knee locked up for four days. I did all the heat and ice therapies, took extra medication and tried not to complain. But all my plans were cancelled with no advance warning.
[3] Communicate with her that you understand she has some limitations. So ask "How far are you comfortable walking today?" and try to accommodate. A two-block walk to the park may seem like miles for her and the few stairs may be impossible. I won't even take escalators any more with my poor knees, so take the elevator with her. Don't run ahead of her, unless you are chasing your kids (or hers!) and understand she may need to sit down on a bench for a few minutes to rest, even after walking just one-hundred feet. Standing can also be hard, so even if the carousel line looks like a ten minute weight, she may need for you to stand in line and then let her jump in at the last minute.
[4] Show some interest in what she deals with but ask politely. For example, say, "What is your greatest challenge?" Avoid sharing with her about the many cures you've heard about on TV and in the magazines for her illness; don't try to sell her products from your trunk that will cure here overnight; and don't think that it will encourage her to hear about your mother's cousin's sister who has the same illness but still manages to raise four children and work a midnight shirt at the local hospital because she "refuses to give in her illness."
[5] Be aware of simple things that may be difficult for her. For example, if you go to the beach, you may want to ask her if she would like to be dropped off while you find a parking spot; she may not be able to sit on the ground so bring a few lawn chairs so she isn't the only one two feet above the rest of your friends. She will likely be limited in her sun-exposure. She may not be able to carry as much picnic items as you can from the car. While you don't want to make her feel helpless, nor does she want you to make a big deal out of it, just be aware that she may need some extra considerations.
[6] Don't assume that she can take care of your children unless she volunteers. Watching kids is exhausting and just taking care of her own may be all she can handle for the moment. Plus, if your kids play in the street, when a car comes she's not going to be able to jump three tricycles and sprint to grab their little hands nearly as fast as you could.
[7] Plan activities that she can be a part of. While you may love your stroller exercise groups, and mommy and me gym classes, these may not be possible for her. Find out what types of things she likes to do and then ask if you can join her for these. Keep the activities under two or three hours; even though you may typically go to the zoo for six hours, understand that she may need to leave earlier than you. Don't say, "A little more walking may do you some good!"
[8] Lastly, tell her those words that every mom so wants to hear at least once in her life: "You are doing such a great job as a mom. I don't know how you do it all, especially with your illness. I really admire your perseverance and strength."