Upon the diagnosis of an illness everyone, including your doctor, likely tells you to go to a support group. Research has shown that support groups can be extremely helpful in how one copes with disease. And yet, not everyone finds a group to be the answer to the kind of support for which they are searching. Like any kind of group, there are some support groups you will "click" with and others you will not. So don't rule out all support groups just because one doesn't seem like a good fit.
But is a support group really necessary right now? Whether you are looking for a amyloidosis support group in New York City or an Aspergers support group in Dallas, the real question may be, is this a season in your life when you need the support that a small group offers? Just as changes occur while we living with illness for decades there are seasons in our life when an illness support group may be where we find our very best friends; Other times it may feel like we have no desire, or even need, to attend.
Below are eight signs that a support group may be something you do not need right now:
1. You are managing your illness on a daily basis without any trouble. In fact, you are so busy with other things going on in your life, you don't really have time to analyze just how well you are coping with illness.
2. You have a solid group of people who are a good influence. Friends or family members are supportive in your efforts to live your best life possible despite having an illness.
3. You don't feel anger, bitterness or resentment toward people who are physically healthy. You are able to have relationships without comparing your abilities (or lack of) to others.
4. You easily carry on conversations with people without ever bringing up the topic of your illness. You don't believe that your illness is such a fundamental part of who you are that it's necessary to describe your medical challenges to total strangers.
5. You don't watch others with envy. You feel you have overcome any annoyances you may have previously felt toward people who have their health, but who do not seem to be appreciating it.
6. You have found that when you sit around at support group meetings talking about the highs and lows of living with illness, you rarely leave the meeting feel better. The support group you are in is more depressing than refreshing and talking about your illness doesn't seem to be helpful.
7. You are able to be a good advocate for your well-being. When you need information on symptoms or tips about living with your illness, you are equipped to find the information.
8. You have at least one friend who lives with illness that you feel you can talk freely with about what you may be experiencing. You have the opportunity to vent or share ideas with someone who understands your "language" of illness.
If you connected with some of the examples above, it's likely that you don't really need a support group at this point in your life. But surprise! You could be an exceptional facilitator of an illness support group. All of the signs above make a simple outline for your proposal for starting up a support group.
The most successful support groups are those led by people who have overcome the daily aggravations and animosities that occur during the first years of being diagnosed with a chronic illness. Since you have coped with the initial rollercoaster of emotions and have survived, a support group of people still struggling with them would benefit from your experience and expertise.
If leading a support group does not seem to be part of your calling, that's a typical reaction! Go enjoy other activities you feel passionate about. And don't forget that there are amazing people in support groups who will be there when you feel you need them.