After planning for your new illness support group for weeks, or perhaps even months, it's finally time to have your first meeting. You've gone through the steps of preparing a proposal to start up a support group. It's been approved by whoever is in charge, such as an organization or church. And you've put together a welcome folder for all the people who will attend. You have topics to discuss, speakers scheduled, and perhaps even a study planned.



So, does this mean that your illness support group meeting will run without a hitch? Unfortunately, despite all of your hard work, there are a few frustrations that you will likely encounter during those first few meetings. They are worth being aware of so that you are prepared in advance.

(1) Few people attend.

How it feels: Disappointing. After all the work you put into it, not to mention the passion you feel about doing this, it seems like such a wasted to just have one or two people show up. Understand that this can be typical, especially at first, when everyone feels a bit intimidated. Try not to take it personally. To be honest, you are fighting an uphill battle in getting people to attend a chronic illness support group, because when people feel ill, they usually want to stay home, not go out and socialist. But when they are feeling well, they'd prefer to do something more fun then sit around and talk about their illness.

What to do: A good motto is "Hope for the best and prepare for the few." HopeKeepers is a Christian small group program that serves the chronically ill, and their founder says, "Although it's discouraging when just a couple of people come, we try to concentrate on the fact that God planned that specific meeting. Once I had just one person come to my group and I was bummed out, but we ended up having the best conversation. Later she said that she was terribly shy and probably wouldn't have even spoken if others had attended the meeting."

Keep an outline of your lesson, and include what topics were discussed. Then you can easily "repeat" the meeting with little preparation. And it may not hurt to call people, and without pressuring them, ask if there is anything that you can do to make it easier for them to attend. For example, do they need a ride? What is their best time of day for a meeting?

(2) Everyone seems to ignore your lesson plan.

How it feels: You may be quick to assume that your ideas are just not interesting or helpful enough for people's circumstances. You may even feel a touch of anger that people don't appreciate the time you spent preparing.

What to do: Allocate more than usual flexibility in your timeline at first and then add in more structure as the group meets and you begin to see how it flows. It's most likely that people are so excited to meet one another who understand what they experience living with daily chronic pain, that they just want to talk. You've provided a forum where the floodgates of pent up emotions are sure to spill over as soon as they realize they are allowed to be honest and vulnerable. It's impossible to hold up a book and point people back toward your lesson plan when one of the members is sobbing over her daughter who has told her mom her illness is "all in your head" and until she gets over it they are done. This type of situation can occur at any meeting, but it may be more frequent during the first month.

Talk openly with the group about your desire to have plenty of time available for people to share, but that you also want everyone to leave the meeting feeling refreshed. Regardless of what occurs during the meeting, you will be ending the time together with an inspiring article, scripture, poem, prayer, devotional, etc.

(3) Everyone complains about relationships, the medical professionals, their illness-everything.

How it feels: Like you are expected to manage a small riot. There are many built up emotions where people have experienced deeply wounded feelings, unjust consequences, and even medical errors. It can seem they want you to fix the situation or else they will talk incessantly about it to everyone.

What to do: Write up some guidelines, before your first meeting if possible, and include the "venting guidelines." Read "10 Ways to Make Your Illness Support Group Uplifting." One practical tool is to set a timer and allow everyone to have 60 seconds to share their most frustrating experience of the week. Brainstorm about a contest your group could have that would bring some humor to the venting. For example, the person who handled their irksome situation the best or most creatively could win the "Aggravated the Alligator (a rubber alligator) Award" to take home for the week.

Allow people the freedom to share their concerns and frustrations, but include others in the discussion. Say, "Jane, we can relate with what you are sharing. Can someone else tell us how she or he has dealt with these emotions?" If you are doing a study you can say, "Since we have limited time, lets go ahead and move on to the next question. If anyone has some encouragement for Jane, they can share that with her after our meeting."

(4) One person dominates the conversation and seems to take over the meetings, disregarding any plans you have or other's need to talk.

How it feels: Infuriating! After all your preparation it can be annoying to have someone override your entire meeting and take the group down a path that lacks the encouragement you want to provide. You justifiably could be concerned about her impact on the group and how many people she could scare away.

What to do: Set firm boundaries from the beginning. While it's vital that people are encouraged to communicate their frustrations, they are also responsible for respecting others in the group. They need to watch their language, the quantity of time they dominate a conversation, and how they comment on people's treatments or decisions.

One of the best ways to approach this is to include guidelines about how the group will function that are given to all new members. If the person who dominates the conversations doesn't understand your simple comments of "Let's see how other people feel" then talk to her one-on-one. Politely go over the guidelines. You may want to put her in charge of a part of the meeting where she can have a leadership role. Having the guidelines to refer to will make it feel less of a personal attack than if you are simply correcting her behavior.

In conclusion, understand that leading an illness support group is not the uncomplicated task it is often assumed to be. Sometimes we think of it as simply letting people know when you're getting together to share and support one another, loads of people show up, and everyone's personalities click perfectly. Don't be alarmed if it doesn't work this way.

It takes a extraordinary person to lead a group; one who can effectively communicate. One who has a gift in gently guiding people in the direction you wish them to go, so that the group is a place to lay down one's burdens, not pick up more arms. A leader should be able offer compassion, but also set boundaries and sometimes diffuse anger. As conditions arise, look to other leaders for ideas and support and perhaps even mentoring. And don't ever forget that there are no leaders that feel one-hundred percent proficient. Having a willingness to learn and listen is one of the best ways you can become a leader blessed with a group where lives are changed.